LKGS Support Resource is an inclusive home for parents, caregivers, and families of children with cleft lip and palate — known in German as Lippen-Kiefer-Gaumenspalte (LKGS). Whatever your background, language, or family shape, you are welcome here. Find honest stories, practical guidance, and links to trusted support including Deutsche Cleft Kinderhilfe e.V.
The first weeks after diagnosis or birth can feel overwhelming. This resource meets every caregiver — single parents, same-sex parents, families of all cultures — with calm words, clear next steps, and the reassurance that they are not alone.
We use person-first language, welcome all family structures, and actively avoid outdated or hurtful terms. Every child and every caregiver is treated with equal dignity here.
Starting as a curated guide, this site will grow into a full multilingual resource — with articles, interviews, and stories from families across Germany and around the world.
This featured section is meant for your own family story or a guest post from another parent. It can explain the diagnosis journey, surgery fears, feeding struggles, or the quiet moments of strength that helped your family keep moving forward.
“Strength grows when fear finally meets understanding.”
Why suction works differently with a cleft, which specialist bottle systems are used internationally, what questions to ask your cleft team before leaving hospital, and how to protect your own wellbeing through the earliest weeks.
Read the full articleCreate a highly shareable checklist article here: medical papers, feeding tools, comforting items, clothes, snacks, and the small details parents usually remember too late.
Turn this into a checklist postThis post can help parents explain the condition, set emotional boundaries, and answer repetitive questions with confidence and grace.
Draft this article nextThese are good examples of external resources to include early, while keeping your own voice central and supportive.
Add this as a key nonprofit link and donation pathway on your site.
Visit organizationA major source of patient and family support information for cleft and craniofacial care.
Explore family resourcesHelpful hub that links families to multiple support organizations and guides.
Open resource pageThis space is open to all caregivers: mothers, fathers, grandparents, foster families, same-sex parents, and single parents. Reach out to the organisations below, share your story, or simply know that you are not facing this alone.
Parent stories submission form.
Country-wise hospital and specialist directory.
Multilingual article versions, starting with German and English.
